中国实用儿科杂志

中国实用儿科杂志

• 专题笔谈 • 上一篇    下一篇

儿童血友病多学科治疗

  

  1. 1.成都市妇女儿童中心医院儿童血液肿瘤科， 四川成都  610091；2.成都新世纪妇女儿童医院血液科，四川  成都  610015
  • 出版日期:2017-01-06 发布日期:2017-01-06

Multidisciplinary treatment for children with hemophilia

  1. Department of Hematology and Oncology，Chengdu Women and Children’s Central Hospital， Chengdu  610091，China
  • Online:2017-01-06 Published:2017-01-06

摘要：

血友病是一种先天性出血性疾病，多学科参与的综合治疗模式是现代血友病治疗的最理想模式。多学科成员应当包括血液专科医师、护士、外科医师、口腔科医师、实验室医师等。治疗内容不仅包括血友病替代治疗，还包括手术、口腔、疫苗接种、遗传咨询等多学科问题的管理。通过多学科综合治疗，血友病患儿的生活质量可以得到很大提高、治疗费用减少、家庭和社会负担减轻。

关键词: 儿童, 血友病, 治疗

Abstract:

Hemophilia is an X-linked congenital bleeding disorder. Comprehensive care by a multidisciplinary team is the optimal treatment model for hemophilia. Multidisciplinary team members include pediatricians and/or adult hematologists，nurses，the experts in surgery，stomatology and laboratory，etc. Comprehensive care includes not only factor replacement therapy but also multidisciplinary management for surgery， oral cavity problem， vaccine， genetic counseling，etc. Coordinated by a multidisciplinary team， comprehensive care can improve the quality of life of patients with hemophilia，   decrease the cost of treatment and the burden of family or society.

Key words: child, hemophilia, treatment