中国实用儿科杂志

中国实用儿科杂志 ›› 2025, Vol. 40 ›› Issue (4): 341-347.DOI: 10.19538/j.ek2025040614

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炎症性肠病青春期向成人过渡相关评估工具研究进展

  

  1. 1.国家儿童医学中心（北京）  首都医科大学附属北京儿童医院  a 临床流行病与循证医学中心，b 消化科，北京  100045；2.深圳市儿童医院消化科，广东  深圳  518031 聂晓璐与胡芳对本文有同等贡献，为本文并列第一作者
  • 出版日期:2025-04-06 发布日期:2025-05-13
  • 通讯作者: 彭晓霞，电子信箱：pengxiaoxia@bch.com.cn；吴捷，电子信箱：wujie@bch.com.cn
  • 基金资助:
    国家重点研发计划（2022YFC2703603）；2024年度慢性病防治与健康教育科研项目（No. BJMB0012024026008）；深圳市“医疗卫生三名工程”项目资助（SZSM202311023）

Research advancements in assessment tools with inflammatory bowel disease transiting from adolescence to adulthood

  1. *Center for Clinical Epidemiology and Evidence-based Medicine，Beijing Children's Hospital，Capital Medical University，National Center for Children Health，Beijing  100045，China
  • Online:2025-04-06 Published:2025-05-13

摘要： 基于患者自我报告结局的评估工具在有计划地监测和评估慢性疾病患者青春期向成人过渡准备情况与自我效能方面发挥重要作用。在我国，目前炎症性肠病患儿青春期向成人过渡管理实践与模式尚处于探索起步阶段，有必要全面梳理国内外较为成熟的过渡相关评估工具，为制定符合我国国情与文化背景相适应的炎症性肠病患儿青春期向成人过渡管理实践指南提供参考依据。

关键词: 炎症性肠病, 青春期, 向成人过渡, 自我效能, 知识, 评估工具

Abstract: Assessment tools based on patient-reported outcomes play a crucial role in systematically monitoring and evaluating the readiness and self-efficacy of adolescents with chronic diseases transiting to adulthood. In China， the management practices and models for pediatric patients with inflammatory bowel disease （IBD） transiting from adolescence to adulthood are still in the exploratory and initial stages. It is necessary to comprehensively review mature transition-related assessment tools from both domestic and international sources to provide a reference for developing practice guidelines for pediatric patients with inflammatory bowel disease transiting to adulthood which are suitable to China's national conditions and cultural background.

Key words: inflammatory bowel disease, adolescence, transition to adulthood, self-efficacy, knowledge, assessment tools